The final guidance on the use of Dinutuximab beta for treating high risk neuroblastoma has been published by NICE.  Visit their website for details.

Neuroblastoma UK announces the opening of its 2018 research grant round. Applications are invited for UK or Republic of Ireland (ROI) led research that will benefit children with neuroblastoma.

Update on today’s meeting with NICE re Dinutuximab beta.

After working with the great team at Smile with Siddy supporting research projects together, we are pleased to announce they are joining us at Neuroblastoma UK.

Formalising our collaboration means that we combine our respective strengths and shared belief of driving forward research. We are also delighted that Flora Cahill, Chair of Smile with Siddy, will join Neuroblastoma UK as one of our trustees. Flora brings a wealth of fundraising expertise and driving awareness of neuroblastoma to enable us to continue fund ground breaking research

Statement by Neuroblastoma UK in response to the decision by NICE not to fund Dinutuximab beta for children.

After an outstanding 16 months as Acting Chair, Guy Blanchard is returning to his position as Research Trustee. Guy took on the role in January 2017 and hands over to our new Chair, Tony Heddon. We would like to thank Guy, and congratulate Tony, both continue to make amazing contributions.

Research Trustee Guy Blanchard took on the role of Acting Chair in January 2017, to drive forward our role in funding the best UK collaborative research to find new and kinder treatments so that all children survive neuroblastoma.

We are enormously grateful to Guy for taking on this position and for his calm and thoughtful leadership and we send our thanks to him.  As he returns to his research role, we look forward to his continued contribution to the charity.

Read more about his time as Acting Chair and why his priority is to ensure we remain an independent and experienced voice to represent children with this devastating disease.

A huge shout out to our team of London Marathon runners.  They are counting down the days to the starter's hooter and have been very busy training and fundraising.  We're extremely grateful to all their efforts to raise funds for neuroblastoma research.

We're honoured to announce that X Factor star and singer / songwriter, Emily Middlemas is donating all proceeds of her new song 'LAYLA' to Neuroblastoma UK. Emily met 3 year old Layla Greene at one of her concerts and wrote this song as a tribute to the little girl who sadly passed away earlier this year.

'LAYLA' is released 16 March 2018, with Emily performing her new song at Niamhs Next Step Neuroblastoma Cancer Charity Celebrity Football Match 15 April 2018.