Personal Stories
A growing collection of individual neuroblastoma experiences and perspectives as told by the families, friends and carers most closely affected.
Anna’s Story
Anna was diagnosed with Stage 3 neuroblastoma in October 2001, just a few months before her 2nd birthday and underwent six months of treatment. Anna has now been in remission for over 24 years and is a mum to baby Agnes.
Elizabeth, Anna’s mum, shares her story…
Rex’s Story
Rex was diagnosed with Stage 4 high-risk neuroblastoma in May 2025 at just three years old. His mum Sarah and sister Sophie, reflect on the past year and Rex’s courage throughout his treatment…
Isla’s Story
Isla was diagnosed with neuroblastoma at just 7 years old and is currently undergoing treatment. Isla’s parents Hollie and Ben share her story on World Cancer Day to help raise awareness…
Heather’s Story
Heather was diagnosed with Stage 4 Neuroblastoma at just 18 months old in 1990. Despite statistics not looking promising, Heather is now a happy and healthy 36-year-old. She shares her story today as a story of hope for families facing neuroblastoma…
Lowen’s Story
Lowen was diagnosed with high risk, stage 4 neuroblastoma at just four years old in 2022. After 18-months of treatment Lowen is in remission and despite some side effects is a happy and healthy eight-year-old. Fliss, Lowen’s mum shares his story…
Tommy’s Story
Tommy was diagnosed with Stage 4 High-Risk Neuroblastoma in April 2024 at just two years old. After 18-months of intensive treatment Tommy is now thankfully in remission, but side effects from treatment have left a lasting impression. Tommy’s mum Nicole shares his story…
Katie’s Story
Katie was diagnosed with neuroblastoma in 1995 just before her third birthday and is thankfully now a happy and healthy 33- year-old. Thirty years on, Katie’s dad Richard reflects on their experience…
Jake’s Story
Jake was diagnosed with Stage 4 neuroblastoma in January 2004 at twelve years old. After 6-months of treatment Jake sadly died in August 2004. Jake’s Mum Lorraine shares his story.