Advocacy & Collaboration
Neuroblastoma UK collaborates or partners with local, national and international bodies to further neuroblastoma research and awareness.
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Working together with over 60 cancer charities across the UK, collectively supporting millions of people living with cancer, these organisations came together as One Cancer Voice to call on the UK Government for healthcare strategies that are ambitious, fully funded and listens to the voices and evidence of the cancer community.
The Association of Medical Research Charities (AMRC) brings together and supports health and medical charities to produce high quality research, develop best practice , provide information and guidance, influence government policy and improve the public dialogue surrounding research and science and the reliance on medical charities for its full delivery.
52% (recent statistics show an increase to 55%) of UK cancer deaths are from the less common cancers. Despite this, the less common cancers remain severely underrepresented and under-funded across all areas, including policy, services and research.
SIOPEN is dedicated to improving the cure rate for children with neuroblastoma. There are regular world-wide meetings of international experts to discuss latest research and treatment, as well as frequent meetings of SIOPEN members to refine the way that the disease will be tackled.
The Rare Cancers Bill, led by Scott Arthur MP, has today passed its Third Reading in the House of Commons, bringing renewed hope to those affected by rare and less common cancers, including devastating childhood cancers such as neuroblastoma.
We need your help to ensure the Rare Cancers Bill passes its third reading.
After months of cross-party support and progress, the Rare Cancers Bill is now at serious risk of falling. We urgently need your help to make sure it passes.
April is Teenage and Young Adult Cancer Awareness Month (TYACAM) – an opportunity for
charities and the young people we support to come together and raise awareness of the unique
set of challenges facing this age group after being told they have cancer.
