Personal Stories
A growing collection of individual neuroblastoma experiences and perspectives as told by the families, friends and carers most closely affected.
Maria’s Story
Maria was diagnosed with Stage 4 Neuroblastoma in March 2019 at 13-years-old and after three years of treatment sadly died in 2022. Her mum, Leyla, shares her story…
Harper's story
Harper was diagnosed with Stage 4 High Risk Neuroblastoma at just one-year-old in 2023. Despite a relapse scare and some side effects from her treatment, two years on from her diagnosis Harper has no evidence of disease (NED) and is about to start nursery. Harper's mum Jenny shares her story…
Alex's story
Hayley has kindly shared a heart-warming story about her son, Alex, who was diagnosed with neuroblastoma at the age of two. Alex’s story demonstrates just how important treatments and research can be for the lives of children with neuroblastoma and their families.
Demie’s Story
Demie was diagnosed with neuroblastoma when she was just 6 years old, 20 years on she is a Paediatric Intensive Care Nurse in London and has been in remission for over 18 years. Demie shares her story for International Cancer Survivors Day…
Rebecca & Heidi’s Story
For International Sibling Day we spoke with Rebecca, who lost her sister Heidi to Neuroblastoma in 2000. 25 years later, Rebecca reflects on her experience of watching her sister battle neuroblastoma and how it has motivated her to start fundraising. Rebecca share’s their story here…
Tilly’s Story
Tilly was diagnosed with Stage 4 Neuroblastoma in November 2021 and sadly passed away in September 2022 at the age of four. Tilly’s dad, Jonathan, shares her story here…
Apple's story
Apollonia (Apple) was diagnosed with stage four, high risk neuroblastoma on 9th August 2021. She has been in remission since November 2022 and is a happy, healthy six year old. “Thanks to the research funded by Neuroblastoma UK, our Apple has a chance now.” Anthea, Apple’s mum, shares their story.
George's story
George, aged three, was diagnosed with stage four neuroblastoma in April 2020.
“When George was diagnosed, it really helped to read positive stories so I hope our story helps other families like ours to see it’s not all doom and gloom.” His mum Roxanne shares their story.
Niamh's story
Niamh, now 25 years old, was diagnosed with neuroblastoma when she was 15.
In 2020, her cancer returned and she is once more undergoing treatment. She’s currently on a research drug trial but is doing well. This is her story.