Personal Stories
A growing collection of individual neuroblastoma experiences and perspectives as told by the families, friends and carers most closely affected.
Lowen’s Story
Lowen was diagnosed with high risk, stage 4 neuroblastoma at just four years old in 2022. After 18-months of treatment Lowen is in remission and despite some side effects is a happy and healthy eight-year-old. Fliss, Lowen’s mum shares his story…
Tommy’s Story
Tommy was diagnosed with Stage 4 High-Risk Neuroblastoma in April 2024 at just two years old. After 18-months of intensive treatment Tommy is now thankfully in remission, but side effects from treatment have left a lasting impression. Tommy’s mum Nicole shares his story…
Maria’s Story
Maria was diagnosed with Stage 4 Neuroblastoma in March 2019 at 13-years-old and after three years of treatment sadly died in 2022. Her mum, Leyla, shares her story…
Harper's story
Harper was diagnosed with Stage 4 High Risk Neuroblastoma at just one-year-old in 2023. Despite a relapse scare and some side effects from her treatment, two years on from her diagnosis Harper has no evidence of disease (NED) and is about to start nursery. Harper's mum Jenny shares her story…
Alex's story
Hayley has kindly shared a heart-warming story about her son, Alex, who was diagnosed with neuroblastoma at the age of two. Alex’s story demonstrates just how important treatments and research can be for the lives of children with neuroblastoma and their families.
Demie’s Story
Demie was diagnosed with neuroblastoma when she was just 6 years old, 20 years on she is a Paediatric Intensive Care Nurse in London and has been in remission for over 18 years. Demie shares her story for International Cancer Survivors Day…
Rebecca & Heidi’s Story
For International Sibling Day we spoke with Rebecca, who lost her sister Heidi to Neuroblastoma in 2000. 25 years later, Rebecca reflects on her experience of watching her sister battle neuroblastoma and how it has motivated her to start fundraising. Rebecca share’s their story here…
Tilly’s Story
Tilly was diagnosed with Stage 4 Neuroblastoma in November 2021 and sadly passed away in September 2022 at the age of four. Tilly’s dad, Jonathan, shares her story here…
Apple's story
Apollonia (Apple) was diagnosed with stage four, high risk neuroblastoma on 9th August 2021. She has been in remission since November 2022 and is a happy, healthy six year old. “Thanks to the research funded by Neuroblastoma UK, our Apple has a chance now.” Anthea, Apple’s mum, shares their story.