Personal Stories

A growing collection of individual neuroblastoma experiences and perspectives as told by the families, friends and carers most closely affected.

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George's story

George, aged three, was diagnosed with stage four neuroblastoma in April 2020.

“When George was diagnosed, it really helped to read positive stories so I hope our story helps other families like ours to see it’s not all doom and gloom.” His mum Roxanne shares their story.

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Niamh's story

Niamh, now 25 years old, was diagnosed with neuroblastoma when she was 15.

In 2020, her cancer returned and she is once more undergoing treatment. She’s currently on a research drug trial but is doing well. This is her story.  

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Bethany's story

Just weeks before her 2nd birthday, Beth was diagnosed with stage four high risk neuroblastoma.

But two years after her initial diagnosis and being clear of her cancer for six months, Beth relapsed twice. On Christmas Eve 2019, Beth quietly passed away. She was five years old.

Jill, Beth’s mummy shares their story.

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Sarah’s Story

Robert’s daughter, Sarah, was diagnosed with Stage 4 neuroblastoma in December 1999 when she was seven years old - and sadly passed away a few years later at the age of 11.  Nearly 20 years on since his loss, Robert remembers Sarah and shares her story here…


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Max’s Story

Max started chemotherapy on his 2nd birthday, after suffering with ‘dancing eye syndrome’ as a result of a neuroblastoma. Now turning 3 he has finished treatment and is awaiting results - having also raised over £10,000 for Neuroblastoma UK.

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Sophie’s Story

Donna had a feeling there was something seriously wrong with her daughter, Sophie, but it took several visits to the doctor before she was finally diagnosed with neuroblastoma at the age of six months. Now aged four, Sophie is doing well and looking forward to starting school in September. Donna shares her story here…

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Rory's story

Rory was diagnosed with stage 4s neuroblastoma when she was just two weeks old and was given a 30% chance of survival. She not only had to fight cancer, but sepsis too. In May 2024 Rory rang the bell and has officially been declared cancer free, ready to start school this August.

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