Personal Stories

A growing collection of individual neuroblastoma experiences and perspectives as told by the families, friends and carers most closely affected.

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Sophie’s Story

Donna had a feeling there was something seriously wrong with her daughter, Sophie, but it took several visits to the doctor before she was finally diagnosed with neuroblastoma at the age of six months. Now aged four, Sophie is doing well and looking forward to starting school in September. Donna shares her story here…

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Rory's story

Rory was diagnosed with stage 4s neuroblastoma when she was just two weeks old and was given a 30% chance of survival. She not only had to fight cancer, but sepsis too. In May 2024 Rory rang the bell and has officially been declared cancer free, ready to start school this August.

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Christopher’s Story

Christopher was 36 years old when he was diagnosed with Neuroblastoma for the first time. He talks about the isolation of having a cancer predominantly diagnosed in children, as well as his efforts to live each day as it comes.

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George's story

George, aged three, was diagnosed with stage four neuroblastoma in April 2020.

“When George was diagnosed, it really helped to read positive stories so I hope our story helps other families like ours to see it’s not all doom and gloom.” His mum Roxanne shares their story.

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Matthew's story

Carolyn is supporting Neuroblastoma UK by taking on the Glasgow Kiltwalk 2024 in memory of her son, Matthew, who sadly passed away in November 2022 at the age of two and a half. She shares Matthew’s story here…

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Niamh's story

Niamh, now 25 years old, was diagnosed with neuroblastoma when she was 15.

In 2020, her cancer returned and she is once more undergoing treatment. She’s currently on a research drug trial but is doing well. This is her story.  

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Ellie’s story

Aurora employee, Jody, nominated Neuroblastoma UK to be one of the company’s charity partners for this year, after sadly losing her six-month-old daughter, Ellie, to neuroblastoma in 2011. Jody shares her story here…

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