Personal Stories

A growing collection of individual neuroblastoma experiences and perspectives as told by the families, friends and carers most closely affected.

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Ryan's story

Ryan and his mum Lisa are supporting our Christmas Appeal this year. “Ryan was diagnosed with stage 4 high risk neuroblastoma on 26th October 2009, when he was three years old. He was given less than 5% chance of surviving until Christmas. Today, Ryan is a happy 13 year old. I hope that sharing our positive story goes a long way in giving other families hope.”

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Oscar's story

“Oscar was 18 months old when he was diagnosed with neuroblastoma and OMS, or ‘dancing eye syndrome’. He was in surgery for six hours whilst the doctors performed a biopsy. The surgeon came to see us afterwards and simply said “I’ve got it.”.

Oscar is like a different child now. He’s just so much happier. He’s tough, he’s strong willed and stronger for all he’s experienced.” His mum Keira shares their story.

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