Personal Stories

A growing collection of individual neuroblastoma experiences and perspectives as told by the families, friends and carers most closely affected.

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Summer Lee Summer Lee

Heather’s Story

Heather was diagnosed with Stage 4 Neuroblastoma at just 18 months old in 1990. Despite statistics not looking promising, Heather is now a happy and healthy 36-year-old. She shares her story today as a story of hope for families facing neuroblastoma… 

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personal stories Summer Lee personal stories Summer Lee

Lowen’s Story

Lowen was diagnosed with high risk, stage 4 neuroblastoma at just four years old in 2022. After 18-months of treatment Lowen is in remission and despite some side effects is a happy and healthy eight-year-old. Fliss, Lowen’s mum shares his story…

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personal stories Summer Lee personal stories Summer Lee

Tommy’s Story

Tommy was diagnosed with Stage 4 High-Risk Neuroblastoma in April 2024 at just two years old. After 18-months of intensive treatment Tommy is now thankfully in remission, but side effects from treatment have left a lasting impression. Tommy’s mum Nicole shares his story…

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Summer Lee Summer Lee

Katie’s Story

Katie was diagnosed with neuroblastoma in 1995 just before her third birthday and is thankfully now a happy and healthy 33- year-old. Thirty years on, Katie’s dad Richard reflects on their experience…

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Summer Lee Summer Lee

Jake’s Story

Jake was diagnosed with Stage 4 neuroblastoma in January 2004 at twelve years old. After 6-months of treatment Jake sadly died in August 2004. Jake’s Mum Lorraine shares his story.

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Demie’s Story

Demie was diagnosed with neuroblastoma when she was just 6 years old, 20 years on she is a Paediatric Intensive Care Nurse in London and has been in remission for over 18 years. Demie shares her story for International Cancer Survivors Day…

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Niamh's story

Niamh, now 25 years old, was diagnosed with neuroblastoma when she was 15.

In 2020, her cancer returned and she is once more undergoing treatment. She’s currently on a research drug trial but is doing well. This is her story.  

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