Personal Stories
A growing collection of individual neuroblastoma experiences and perspectives as told by the families, friends and carers most closely affected.
Katie’s Story
Katie was diagnosed with neuroblastoma in 1995 just before her third birthday and is thankfully now a happy and healthy 33- year-old. Thirty years on, Katie’s dad Richard reflects on their experience…
Jake’s Story
Jake was diagnosed with Stage 4 neuroblastoma in January 2004 at twelve years old. After 6-months of treatment Jake sadly died in August 2004. Jake’s Mum Lorraine shares his story.
Maria’s Story
Maria was diagnosed with Stage 4 Neuroblastoma in March 2019 at 13-years-old and after three years of treatment sadly died in 2022. Her mum, Leyla, shares her story…
Demie’s Story
Demie was diagnosed with neuroblastoma when she was just 6 years old, 20 years on she is a Paediatric Intensive Care Nurse in London and has been in remission for over 18 years. Demie shares her story for International Cancer Survivors Day…
Tilly’s Story
Tilly was diagnosed with Stage 4 Neuroblastoma in November 2021 and sadly passed away in September 2022 at the age of four. Tilly’s dad, Jonathan, shares her story here…
Niamh's story
Niamh, now 25 years old, was diagnosed with neuroblastoma when she was 15.
In 2020, her cancer returned and she is once more undergoing treatment. She’s currently on a research drug trial but is doing well. This is her story.
Bethany's story
Just weeks before her 2nd birthday, Beth was diagnosed with stage four high risk neuroblastoma.
But two years after her initial diagnosis and being clear of her cancer for six months, Beth relapsed twice. On Christmas Eve 2019, Beth quietly passed away. She was five years old.
Jill, Beth’s mummy shares their story.
Sarah’s Story
Robert’s daughter, Sarah, was diagnosed with Stage 4 neuroblastoma in December 1999 when she was seven years old - and sadly passed away a few years later at the age of 11. Nearly 20 years on since his loss, Robert remembers Sarah and shares her story here…
Violet’s Story - Childhood Cancer Awareness Month
At age 9 Violet told her mum that she had a monster in her tummy, prompting her mum Laura to seek medical support. After an ultrasound it was discovered Violet had neuroblastoma. Now having reached NEAD (no evidence of active disease) Laura reflects on the last year and the fears she still carries for her daughter’s health.