Personal Stories

A growing collection of individual neuroblastoma experiences and perspectives as told by the families, friends and carers most closely affected.

Share Your Story
personal stories Summer Lee personal stories Summer Lee

Demie’s Story

Demie was diagnosed with neuroblastoma when she was just 6 years old, 20 years on she is a Paediatric Intensive Care Nurse in London and has been in remission for over 18 years. Demie shares her story for International Cancer Survivors Day…

Read More
personal stories Guest User personal stories Guest User

Niamh's story

Niamh, now 25 years old, was diagnosed with neuroblastoma when she was 15.

In 2020, her cancer returned and she is once more undergoing treatment. She’s currently on a research drug trial but is doing well. This is her story.  

Read More
personal stories, christmas Guest User personal stories, christmas Guest User

Bethany's story

Just weeks before her 2nd birthday, Beth was diagnosed with stage four high risk neuroblastoma.

But two years after her initial diagnosis and being clear of her cancer for six months, Beth relapsed twice. On Christmas Eve 2019, Beth quietly passed away. She was five years old.

Jill, Beth’s mummy shares their story.

Read More
personal stories Summer Lee personal stories Summer Lee

Sarah’s Story

Robert’s daughter, Sarah, was diagnosed with Stage 4 neuroblastoma in December 1999 when she was seven years old - and sadly passed away a few years later at the age of 11.  Nearly 20 years on since his loss, Robert remembers Sarah and shares her story here…


Read More
personal stories Summer Lee personal stories Summer Lee

Max’s Story

Max started chemotherapy on his 2nd birthday, after suffering with ‘dancing eye syndrome’ as a result of a neuroblastoma. Now turning 3 he has finished treatment and is awaiting results - having also raised over £10,000 for Neuroblastoma UK.

Read More