Personal Stories
A growing collection of individual neuroblastoma experiences and perspectives as told by the families, friends and carers most closely affected.
Lowen’s Story
Lowen was diagnosed with high risk, stage 4 neuroblastoma at just four years old in 2022. After 18-months of treatment Lowen is in remission and despite some side effects is a happy and healthy eight-year-old. Fliss, Lowen’s mum shares his story…
Tommy’s Story
Tommy was diagnosed with Stage 4 High-Risk Neuroblastoma in April 2024 at just two years old. After 18-months of intensive treatment Tommy is now thankfully in remission, but side effects from treatment have left a lasting impression. Tommy’s mum Nicole shares his story…
Katie’s Story
Katie was diagnosed with neuroblastoma in 1995 just before her third birthday and is thankfully now a happy and healthy 33- year-old. Thirty years on, Katie’s dad Richard reflects on their experience…
Jake’s Story
Jake was diagnosed with Stage 4 neuroblastoma in January 2004 at twelve years old. After 6-months of treatment Jake sadly died in August 2004. Jake’s Mum Lorraine shares his story.
Maria’s Story
Maria was diagnosed with Stage 4 Neuroblastoma in March 2019 at 13-years-old and after three years of treatment sadly died in 2022. Her mum, Leyla, shares her story…
Demie’s Story
Demie was diagnosed with neuroblastoma when she was just 6 years old, 20 years on she is a Paediatric Intensive Care Nurse in London and has been in remission for over 18 years. Demie shares her story for International Cancer Survivors Day…
Tilly’s Story
Tilly was diagnosed with Stage 4 Neuroblastoma in November 2021 and sadly passed away in September 2022 at the age of four. Tilly’s dad, Jonathan, shares her story here…
Niamh's story
Niamh, now 25 years old, was diagnosed with neuroblastoma when she was 15.
In 2020, her cancer returned and she is once more undergoing treatment. She’s currently on a research drug trial but is doing well. This is her story.
Bethany's story
Just weeks before her 2nd birthday, Beth was diagnosed with stage four high risk neuroblastoma.
But two years after her initial diagnosis and being clear of her cancer for six months, Beth relapsed twice. On Christmas Eve 2019, Beth quietly passed away. She was five years old.
Jill, Beth’s mummy shares their story.