Personal Stories

A growing collection of individual neuroblastoma experiences and perspectives as told by the families, friends and carers most closely affected.

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Harper's story

Harper was diagnosed with Stage 4 High Risk Neuroblastoma at just one-year-old in 2023. Despite a relapse scare and some side effects from her treatment, two years on from her diagnosis Harper has no evidence of disease (NED) and is about to start nursery. Harper's mum Jenny shares her story…

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Alex's story

Hayley has kindly shared a heart-warming story about her son, Alex, who was diagnosed with neuroblastoma at the age of two. Alex’s story demonstrates just how important treatments and research can be for the lives of children with neuroblastoma and their families.

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Max’s Story

Max started chemotherapy on his 2nd birthday, after suffering with ‘dancing eye syndrome’ as a result of a neuroblastoma. Now turning 3 he has finished treatment and is awaiting results - having also raised over £10,000 for Neuroblastoma UK.

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Oscar's story

“My son Oscar was diagnosed with intermediate risk L2 neuroblastoma when he was five months old. Oscar needed several rounds of very strong chemo and more surgery to remove most of the tumour. But nothing has ever stopped him and in August we celebrated Oscar’s third birthday. There is hope.”. Joanne, Oscar’s mummy, shares their story.

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Evie's story

Evie was diagnosed with stage L2, intermediate risk neuroblastoma in September 2020, when she was 21 months old.

“Evie has been so resilient, happy and amazing throughout her treatment. But we know things could be so different if we hadn’t taken her to the doctors when we did. One year later, she’s doing really well and is a feisty, energetic 2.5 year old.” Evie’s mum Kelly shares their story.

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Toby's story

“Our son Toby is ten years old, loves school, football and keeping fit. But nine years ago, we experienced the worst night of our entire life when he was diagnosed with neuroblastoma.”

Margaret, Toby’s mum shares their story.

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Evie's story

Evie and her twin sister Ella were born three months premature, weighing just over 2lb.

Evie was soon to endure another fight for her life. Shortly before the twins first birthday, aged just ten months, Evie was diagnosed with stage four high risk neuroblastoma. Imogen, Evie’s mum, shares their story.

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