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Holyrood reception to raise awareness of childhood cancer
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Holyrood reception to raise awareness of childhood cancer

Neuroblastoma UK attended Holyrood on Tuesday 26 September, calling on MSPs to ensure childhood cancer is recognised as a critical research priority in Scotland.

The reception, hosted by Rona Mackay MSP for Strathkelvin and Bearsden, was held in memory of two-year-old Matthew Innes to raise awareness of neuroblastoma, a rare and aggressive childhood cancer.

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Neuroblastoma survivor and Team GB Paralympian is our new Patron
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Neuroblastoma survivor and Team GB Paralympian is our new Patron

This International Women’s Day (8 March 2022), we are delighted to announce that neuroblastoma survivor and Team GB Paralympian Charlotte Moore joins Neuroblastoma UK as our new Patron.

Charlotte (Charlie) was just 12 weeks old when she was diagnosed with stage 4 neuroblastoma, after being born with the cancer. She joins fellow charity Patrons Alan Carr, Scott Mills and Angellica Bell as part of our 40th anniversary celebrations.

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Young Scottish cancer survivor braves the shave for three children’s cancer charities
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Young Scottish cancer survivor braves the shave for three children’s cancer charities

14 year old Phoebe from Inverness is shaving her hair to raise money for Neuroblastoma UK and CLIC Sargent, and donates hair to the Little Princess Trust.

Phoebe Macaskill was diagnosed with neuroblastoma, an aggressive childhood cancer, when she was just two years old. She is fundraising for Neuroblastoma UK and CLIC Sargent, two charities that supported Phoebe and her family when she was ill.

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A potential new treatment for neuroblastoma
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A potential new treatment for neuroblastoma

We welcome the news that a potential new treatment for children with neuroblastoma will be advanced to clinical trial and reach more young cancer patients.

Researchers have found an indirect way to target N-Myc, a gene that occurs in aggressive forms of neuroblastoma. They found that a new drug, fadraciclib, is effective at blocking N-Myc activity by switching off the production of N-Myc and a clinical trial for children with high-risk neuroblastoma is due to open by the end of 2020.

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Accelerating drug development for neuroblastoma
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Accelerating drug development for neuroblastoma

An international forum of leading scientists from the UK, Europe and USA, funded by national charity Neuroblastoma UK, prioritises drug development and strategies for new treatment trials for children with neuroblastoma.

In the September edition of European Journal of Cancer, Dr Lucas Moreno from Vall d’Hebron Hospital, Barcelona, and a team of international scientific and clinical experts published an agreed list of genetic targets and drugs that should be advanced for early-phase paediatric clinical trials, following the second Neuroblastoma New Drug Development Strategy (NDDS) forum.

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Press release: Children’s cancer charity Neuroblastoma UK welcomes new Trustee

A mother whose two year old daughter passed away after being diagnosed with neuroblastoma has been appointed as a Trustee at Neuroblastoma UK.

Carolyn Jackson from Kent said, “I am proud and honoured to join Neuroblastoma UK on their Board of Trustees. Neuroblastoma UK is an amazing charity which I have supported since our daughter Florence was diagnosed with neuroblastoma in 2015.”

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