The ICR and the Royal Marsden NHS Foundation Trust have responded to a European Commission consultation on the future of the EU Paediatric Regulation urging European officials to reform the rules on clinical trials in children now or risk cementing the current outdated approach for years to come.
We were saddened to learn of the death of Chris Ewell, a long term supporter of Neuroblastoma UK. Chris has been raising funds for neuroblastoma research for more than twenty years by collecting and recycling aluminium cans.
Neuroblastoma UK is looking for new Trustees and volunteers to join us in our mission to fund new, effective and kinder treatments for children with neuroblastoma. Help us shape how the charity makes the greatest difference for these children in the future.
Videos of talks made at the Parents Day during the Advances in Neuroblastoma Research Congress 2016 held in Cairns, Australia, in June this year and at the Neuroblastoma Update day are now available to download.
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Neuroblastoma UK help-line number is 020 8940 4353
General telephone enquiries can be made to this number, where a message can be left if you are not able to speak to anybody. Alternatively, please will you send your enquiry by email to the secretary and it will be forwarded on to the right person.