Neuroblastoma UK has welcomed today’s announcement by the National Institute for Health and Care Excellence (NICE) that it has approved Dinutuximab beta for funding in the NHS.
Update on today’s meeting with NICE re Dinutuximab beta.
After working with the great team at Smile with Siddy supporting research projects together, we are pleased to announce they are joining us at Neuroblastoma UK.
Formalising our collaboration means that we combine our respective strengths and shared belief of driving forward research. We are also delighted that Flora Cahill, Chair of Smile with Siddy, will join Neuroblastoma UK as one of our trustees. Flora brings a wealth of fundraising expertise and driving awareness of neuroblastoma to enable us to continue fund ground breaking research
Statement by Neuroblastoma UK in response to the decision by NICE not to fund Dinutuximab beta for children.
Research Trustee Guy Blanchard took on the role of Acting Chair in January 2017, to drive forward our role in funding the best UK collaborative research to find new and kinder treatments so that all children survive neuroblastoma.
We are enormously grateful to Guy for taking on this position and for his calm and thoughtful leadership and we send our thanks to him. As he returns to his research role, we look forward to his continued contribution to the charity.
Read more about his time as Acting Chair and why his priority is to ensure we remain an independent and experienced voice to represent children with this devastating disease.
We're honoured to announce that X Factor star and singer / songwriter, Emily Middlemas is donating all proceeds of her new song 'LAYLA' to Neuroblastoma UK. Emily met 3 year old Layla Greene at one of her concerts and wrote this song as a tribute to the little girl who sadly passed away earlier this year.
'LAYLA' is released 16 March 2018, with Emily performing her new song at Niamhs Next Step Neuroblastoma Cancer Charity Celebrity Football Match 15 April 2018.