A Guide to Neuroblastoma
FREE RESOURCE
This guide has been written with the help of experts and parents. It aims to help parents and carers following their child’s diagnosis and gives specific information about neuroblastoma, its treatment and possible side effects. This guide gives a general overview of neuroblastoma and will act as a helpful reminder for any discussions you have with your child’s treatment team.
There is a lot of information in this guide and it may be helpful to read it in small sections. Much of this will be new and may feel overwhelming. We hope this guide will help answer some of your questions so that you understand more about neuroblastoma and its treatment. Don’t be afraid to talk to your team about anything that you don’t understand or would like to discuss in more detail. It is important to remember that every child is an individual and your child’s specific diagnosis must always be discussed with the treatment team caring for them.
You can order free physical copies of this publication, or you can download the digital version.
This booklet has been funded in partnership with CCLG and Solving Kids' Cancer UK.
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This booklet was reviewed by Professor Deborah Tweddle (Professor of Paediatric Oncology, Newcastle, and Medical Trustee of Neuroblastoma UK), Helen Pearson (Advance Nurse Practitioner Solid Tumours, The Royal Marsden, Surrey and Chief Nurse at Solving Kids’ Cancer UK), Dr Tom Jackson (NIHR Clinical Lecturer, UCLH, London), Dr Aditi Vedi (Consultant Paediatric Oncologist, Addenbrookes, Cambridge) and the Solving Kids' Cancer Parent Involvement Forum on behalf of the CCLG Information Advisory Group, comprising parents, survivors and multi-professional experts in the field of children and young people's cancer.