Neuroblastoma UK is the leading neuroblastoma research charity in the UK, having invested over £6M in scientific research projects. Neuroblastoma is the third most common childhood cancer after leukaemia and brain tumours, but is responsible for a disproportionate number of childhood cancer deaths. Whilst survival from leukaemia has dramatically improved over recent decades due to high profile fundraising, it is now neuroblastoma that urgently needs this profile, funding and research effort. Without this research, 30-40 children will continue to die every year in the UK, with many others living with the after-effects of harsh treatments.
The primary activity of the charity is fundraising and allocating funds to the best research projects through a rigorous grant assessment process. Neuroblastoma UK also organises a biennial Neuroblastoma Research Symposium, bringing the UK funding, research and clinical communities together with international experts for presentations, discussion and collaboration. We particularly encourage younger researchers and those new to the field to participate. In conjunction with the Children’s Cancer & Leukaemia Group, the charity produces a comprehensive information booklet about neuroblastoma for parents and families.
As a medium-sized charity currently run exclusively by volunteers, with no paid staff, Neuroblastoma UK faces important choices over how to manage the ever-increasing demand for funding. A number of our Trustees are at the end of their 10-year terms, so we are now looking to recruit Trustees and volunteers to support Trustees in their roles.
We are therefore asking you, our supporters and fundraisers, to help shape how the charity makes the greatest difference for children diagnosed with neuroblastoma in the future.
All you need is a passion to make a difference, to be able to work as part of a team of charity officers, and to be able to commit time to a hands-on role. We welcome applications from all individuals who are excited by the opportunity to add their expertise to the fight against childhood cancer. Whether you are an administrator, a fundraiser, or have knowledge of publishing, editing or the scientific grant allocation process, or would like to help in any way you can, we would like to hear from you.
The Board of Trustees typically meets up to six times a year in London or at one of the institutions throughout the UK where we currently fund research. Communication is otherwise regularly undertaken via email and telephone. To find out more about the commitment and responsibilities of charity Trustees, please visit the Charity Commission website.
All positions are non-remunerative although reasonable expenses will be reimbursed.
If you are interested, please submit your CV and a covering letter explaining how you would like to contribute to the charity by end 12th December 2016 to firstname.lastname@example.org, along with any enquiries.