Neuroblastoma UK is the leading neuroblastoma research charity in the UK, having invested over £6M in scientific research projects. Neuroblastoma is the third most common childhood cancer after leukaemia and brain tumours, but is responsible for a disproportionate number of childhood cancer deaths. Whilst survival from leukaemia has dramatically improved over recent decades due to high profile fundraising, it is now neuroblastoma that urgently needs this profile, funding and research effort. Without this research, 30-40 children will continue to die every year in the UK, with many others living with the after-effects of harsh treatments.
The primary activity of the charity is fundraising and allocating funds to the best research projects through a rigorous grant assessment process. Neuroblastoma UK also organises a biennial Neuroblastoma Research Symposium, bringing the UK funding, research and clinical communities together with international experts for presentations, discussion and collaboration. We particularly encourage younger researchers and those new to the field to participate. In conjunction with the Children’s Cancer & Leukaemia Group, the charity produces a comprehensive information booklet about neuroblastoma for parents and families.
As a medium-sized charity currently run exclusively by volunteers, with no paid staff, Neuroblastoma UK faces important choices over how to manage the ever-increasing demand for funding. Our Chair’s 3-year term concludes in 2017 and we are now seeking a replacement who will relish the challenge of leading the charity to the next exciting stage of its development.
The Chair should have strong vision, the appropriate expertise and time to provide strong hands-on leadership and direction to the Board of Trustees to enable them to fulfil their responsibilities for the overall governance and strategic direction of the charity. She/he must be a passionate advocate for children with neuroblastoma and have experience in the childhood cancer or related field. Experience of managing charitable fundraising is desirable.
The Board of Trustees typically meets up to six times a year in London or at one of the institutions throughout the UK where we currently fund research. Communication is otherwise regularly undertaken via email and telephone. The Chair and Trustees represent Neuroblastoma UK at events local to them.
The position of Chair is non-remunerative although reasonable expenses will be reimbursed.
Please apply with your CV (including the contact details of 2 referees) and a covering letter outlining why you have the skills, experience and energy to take on this role. Applications should be made by email to firstname.lastname@example.org, along with any enquiries.